Advanced kidney disease – planning for end of life care

  1. 1 Introduction
  2. 2 Planning care
  3. 3 Outcomes
  4. 4 Considerations
  5. 5 Summary

Introduction

Many people with advanced kidney disease have long-term treatment plans which improve the quality of their life and help them to live well with their disease. You may have been involved in making decisions and planning your care with the help of your doctors and other health or social care professionals throughout all the stages of your kidney disease so far.

This is fine while you are able to make your wishes known, but as your condition progresses, there may come a time when you are no longer able to make decisions for yourself about your care. It might be that you simply feel too unwell to express your wishes and preferences or make decisions, even though there may be things that are still important to you.

A way of exploring your wishes and preferences for your future care and enabling others to know about them is through the process of advance care planning. This is in case a time comes when you cannot express these wishes or decide for yourself.